Podcast: The NORD Rare Disease Centers of Excellence

  Edward Neilan, MD, PhD, Chief Scientific and Medical Officer at the National Organization for Rare Disorders (NORD), discusses the organization’s recently established Rare Disease Centers of Excellence. As Dr. Neilan explains, there were two main goals when...

The NORD Rare Disease Centers of Excellence

  Edward Neilan, MD, PhD, Chief Scientific and Medical Officer at the National Organization for Rare Disorders (NORD), discusses the organization’s recently established Rare Disease Centers of Excellence. As Dr. Neilan explains, there were two main goals when...

Global Genes CEO Discusses Partnership with Rare-X

  Craig Martin, CEO of Global Genes, discusses the organization’s recent partnership with Rare-X, a technology non-profit that securely gathers, structures, and shares patient-owned data. As Mr. Martin explains, Rare-X is an organization that gathers rare...