About Us

CheckRare is a global learning platform for health care professionals and patients. Our platform allows users to gain insight and learn about rare diseases, current and emerging therapies, clinical trials, and the BioPharma companies behind them. Our peer-to-peer content is a trusted source for education and industry-related content. Our native content and sponsored programs are developed in easy-to-absorb formats through our website, e-newsletter, social media platforms, and live meetings. We are a trusted, strategic partner with all the major organizations in the global network of rare disease advisors and advocates.

In the United States, a rare disease is defined as an illness that affects fewer than 200,000 people. The prevalence of a rare disease usually is an estimate and may change over time. Rare diseases affect 1 in 10 Americans. Over 30 million people in the United States, and 350 million people in the world have a rare disease. According to the U.S. Department of Health and Human Services and the National Institutes of Health, there are about 7,000 rare diseases and about 95% of all rare diseases do not have a single FDA approved drug treatment. There are less than 500 treatments approved by the FDA  for the nearly 7000 rare diseases which have been identified.

CheckRare is a learning platform that provides clinical updates and practical information that can help in diagnosing and treating patients with rare diseases and cancers. Our areas of focus include:

  • Diagnosing and treating rare diseases
  • Current and emerging treatment options
  • Clinical trial updates
  • Insight on rare diseases and orphan drugs
  • Genetic and diagnostic testing

We provide reliable and easy-to-understand information about rare or genetic diseases to:

  • Patients and family members
  • All health care providers including, physicians, nurses, and genetic counselors
  • Researchers and scientists
  • Advocacy groups

Our editors, writers, and information specialists get our content from a number of sources, including interviews with experts, NIH resources, medical conferences, medical centers of excellence, and journal articles.

  • We develop innovative learning programs that reach physicians and patients
  • We develop original content and work with BioPharma companies to develop learning programs with the goal of raising awareness about rare diseases and cancers, current and emerging therapies, and clinical trial awareness.
  •  We partner with all the major organizations in the global network of rare disease advisors and advocates
  •  Developers of an extensive database of physicians, industry executives, advocates, and researchers that we use to promote rare diseases and drive traffic back to our platforms