Our Story

We quickly learned that information alone wasn’t enough. People wanted to hear from the people who knew rare disease best. So we began bringing leading physicians, researchers and other experts into the conversation: capturing their knowledge, perspectives and experiences through video and making them accessible to a much broader audience.

Along the way, we built relationships with experts across the rare disease community and a growing audience of healthcare professionals and others seeking trusted information. What began as a website became a platform for sharing knowledge, amplifying expert voices, and connecting people across a complex and often overlooked part of healthcare.

Today, CheckRare is a rare disease media and education company. We continue to build on that original idea by bringing together the people, stories, expertise, and ideas that can deepen understanding, improve care and make a difference for people affected by complex and often overlooked diseases.