by CheckRare Staff | Apr 23, 2025
Gavin Lindberg details his family’s experience with neuroblastoma, provides advice to families, and discusses the EVAN Foundation. « Prev1 / 1Next »Gavin Lindberg The EVAN FoundationGavin Lindberg AdviceGavin Lindberg Evan's StoryNeuroblastoma:...
by CheckRare Staff | Mar 2, 2025
Neuroblastoma is a rare childhood cancer, but it is the most common extracranial solid tumor in children. It is a neuroendocrine tumor that originates in neuroblasts or neural crest progenitor cells. It often appears initially in the adrenal glands, but tumors can be...
by CheckRare Staff | Feb 1, 2025
Watch the DAYBUE® (trofinetide) in Practice Video Series to Hear Expert Insights on the First Treatment for This Rare Disease By: CheckRare Staff | Updated on: Jan 28, 2025 Rett syndrome thought leaders discuss how DAYBUE® (trofinetide), the first and only...
by CheckRare Staff | Jan 29, 2025
Jean Donadieu, MD, Service d’Hémato-Oncologie Pédiatrique, Hopital, Paris, provides an overview of WHIM syndrome. « Prev1 / 1Next »WHIM Syndrome: Overview, Diagnosis, and MagementWHIM Syndrome: Overview and Importance of Early Diagnosis...
by CheckRare Staff | Nov 1, 2024
Dr. Sujit Sheth, Chief of the Division of Pediatric Hematology/Oncology at Weill Cornell Medicine and an attending pediatrician at New York Presbyterian Hospital, in New York City discusses his recently published work in Blood Advances titled “Rates of severe...
