Choroideremia Research Foundation

Cory MacDonald, Operations Manager, Choroideremia Research Foundation, discusses the origins of his organization and the various clinical trials for this rare eye disorder. Choroideremia is a condition characterized by progressive vision loss that mainly affects...

Raising Awareness of Myeloproliferative Neoplasms (MPNs)

Emmy-Award Winning Actress Finola Hughes discusses why she is raising awareness for a group of rare, chronic and under-recognized blood cancers called Myeloproliferative Neoplasms (MPNs) Finola Hughes is dedicated to increasing awareness for rare blood cancers, while...

Patient Describes His Journey With Polycythemia Vera

After being diagnosised with polycythemia vera (PV), David Gelly finds himself on a new journey. In this video, he explains his diagnosis of PV—one of a group of rare, chronic blood cancers known as myeloproliferative neoplasms (MPNs). MPNs are rare, chronic blood...

Lupus Overview

Lupus erythematosus is a name given to a collection of autoimmune diseases in which the human immune system becomes hyperactive and attacks healthy tissues.[1] Symptoms of these diseases can affect many different body systems, including joints, skin, kidneys, blood...
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