Basal Cell Carcinoma Nevus Syndrome (Gorlin Syndrome) Support

Jean Tang, MD, PhD is co-founder of PellePharm and serves on the PellePharm board of directors. She is a practicing dermatologist and associate professor of dermatology at Stanford University. Gorlin Syndrome is a rare, genetic, disease characterized by mutations in...

Rare in Common: The Challenges of Rare Disease Families

Alisa Shakarian of Cambridge Biomarketing discusses the film Rare in Common and the importance of telling indidivuals’ rare disease stories in a visual manner. Rare in Common follows the experiences of rare families: their struggles, their strength, and their...

Health Care Trends to Look for in 2018

Sam Falsetti, PhD of Cambridge Biomarketing discusses some recent health care trends, specifically focusing on possible changes to the Affordable Care Act and drug development as it affects the rare disease community. Before private insurance market rules that were...
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