Mucopolysaccharidosis (MPS) Resource Center

Mucopolysaccharidoses (MPSs) are a group of genetic lysosomal disorders in which persons have low levels of specific enzymes that leads to an abnormal accumulation of complex carbohydrates (mucopolysaccharides or glycosaminoglycans).

Podcast Focused on Rare Diseases

Rare in Common, a podcast hosted by Andra Stratton, regularly posts conversations with leaders in the rare disease community to help them share their stories.

Lynn O’Connor Vos Discusses the Muscular Dystrophy Association

Lynn O’Connor Vos, President and Chief Executive Officer at the Muscular Dystrophy Association, discusses her organization and it’s approach to funding research to accelerate treatments and cures across the full spectrum of neuromuscular diseases.

Canada is the Orphan of the Orphans

That ease of letting the U.S. take care of the work means that Canada is missing out on early patient access, research funding, and biotech investments.

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