Podcast Focused on Rare Diseases

  Rare in Common, a podcast hosted by Andra Stratton, regularly posts conversations with leaders in the rare disease community to help them share their stories. The podcast began in 2017 at Cambridge Biomarketing, as an offshoot of the company’s documentary ‘Rare...

Canada is the Orphan of the Orphans

  Durhane Wong-Rieger is the president and CEO of the Canadian Organization of Rare Disorders (CORD). CORD is a non-profit organization that represents over 100 patient organizations in educating Canadian policy makers on the value of Canada developing a Rare...

EveryLife Foundation: Its Past, Present, and Future

  At the BIO International Convention recently held in Philadelphia, PA, we talked with Christina Hartman, Senior Director of Advocacy & Policy for the EveryLife Foundation for Rare Diseases about the origins of this amazing organization. Hartman said, “The...

Newborn Screening Saves Lives Reauthorization Act of 2019

  At the BIO International Convention recently held in Philadelphia, PA, we talked with Christina Hartman, Senior Director of Advocacy & Policy for the EveryLife Foundation for Rare Diseases about some of the efforts the non-profit organization is doing to...
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