Rare in Common, a podcast hosted by Andra Stratton, regularly posts conversations with leaders in the rare disease community to help them share their stories. The podcast began in 2017 at Cambridge Biomarketing, as an offshoot of the company’s documentary ‘Rare... Lynn O’Connor Vos, President and Chief Executive Officer at the Muscular Dystrophy Association, discusses her organization and it’s approach to funding research to accelerate treatments and cures across the full spectrum of neuromuscular... Lynn O’Connor Vos, President and Chief Executive Officer of the Muscular Dystrophy Association (MDA) provides an overview of her association. The MDA is committed to transforming the lives of people affected by muscular dystrophy, ALS, and related... Durhane Wong-Rieger is the president and CEO of the Canadian Organization of Rare Disorders (CORD). CORD is a non-profit organization that represents over 100 patient organizations in educating Canadian policy makers on the value of Canada developing a Rare... At the BIO International Convention recently held in Philadelphia, PA, we talked with Christina Hartman, Senior Director of Advocacy & Policy for the EveryLife Foundation for Rare Diseases about the origins of this amazing organization. Hartman said, “The... At the BIO International Convention recently held in Philadelphia, PA, we talked with Christina Hartman, Senior Director of Advocacy & Policy for the EveryLife Foundation for Rare Diseases about some of the efforts the non-profit organization is doing to... 
