Peter Saltonstall: Our Payor System for Drugs Needs to Be Updated

  Peter Saltonstall, President and Chief Executive Officer of the National Organization for Rare Disorders (NORD), discusses how our current drug payer system has not kept up with the science of medicine. We need to understand as a society how much we are willing...

Dup15q Alliance and Syndrome

  Vanessa Vogel-Farley, Executive Director of Dup15q Alliance discusses her organization, which provides family support and promotes awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome. Chromosome 15q11.2-13.1 duplication...

Overview of the Office of Rare Diseases Research

  Anne R. Pariser, MD, Director of the Office of Rare Diseases Research, National Center for Advancing Translational Sciences at the NIH provides an overview of the Office of Rare Diseases Research at the NIH. The National Center for Advancing Translational...
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