Hematologic Disorders

Apr 14, 2021| Posted in: Drug Development, Hematologic Disorders, Treatment

Investigational Drug Provides Improved Quality of Life for PNH Patients

Cedric Francois, MD, PhD, Co-Founder & CEO of…
Apr 12, 2021| Posted in: Congenital And Genetic Conditions, Hematologic Disorders

Hemophilia in the 70s, 80s, and 90s: Fears of HIV and Hepatitis C

Jonathan Hill, a patient with hemophilia A, talks…
Apr 12, 2021| Posted in: Hematologic Disorders

Pregnancy and Thrombotic Thrombocytopenic Purpura (TTP)

Shruti Chaturvedi, MBBS, MS, from Johns Hopkins and…
Apr 5, 2021| Posted in: Autoimmune / Autoinflammatory Disorders, Congenital And Genetic Conditions, Hematologic Disorders

Diagnosing and Treating Thrombotic Thrombocytopenic Purpura (TTP)

Shruti Chaturvedi, MBBS, MS, Assistant Professor of Medicine…
Apr 2, 2021| Posted in: Advocacy, Congenital And Genetic Conditions, Hematologic Disorders

What Doctors Should Know About Sickle Cell Anemia

Malika Abrams, a young woman with sickle cell…
Mar 31, 2021| Posted in: Congenital And Genetic Conditions, Hematologic Disorders

New Graphic Novel About Hemophilia: Blood of the Paladin

Jonathan Hill talks about his graphic novel “Blood…
Mar 25, 2021| Posted in: Autoimmune / Autoinflammatory Disorders, Congenital And Genetic Conditions, Hematologic Disorders

Thrombotic Thrombocytopenic Purpura (TTP) Requires Prolonged Hospital Stay

X. Long Zheng, MD, PhD, of the Department…
Mar 25, 2021| Posted in: Advocacy, Congenital And Genetic Conditions, Hematologic Disorders, Musculoskeletal Diseases

A Rare Disease Patient Describes Her Work in Advocacy

Malika Abrams, a young woman with sickle cell…
Mar 19, 2021| Posted in: Congenital And Genetic Conditions, Hematologic Disorders

Sickle Cell Anemia: “The Pain is Always There”

Malika Abrams, a young woman with sickle cell…
Mar 15, 2021| Posted in: Hematologic Disorders, Treatment

Potential Benefits of a Plant-Based Diet for Livedoid Vasculopathy Patients

We recently had the privilege of talking to…

CME Program: Gaucher Disease Highlights from WORLDSymposium 2020

Neal Weinreb, MD, FACP highlights the latest information about Gaucher disease from WORLDSymposium and provides expert analysis of its clinical relevance to help health care providers better care for patients with this rare disease.

TTR Amyloidosis CME Program

Morie A Gertz, MD, MACP provides an overview of TTR Amyloidosis – including how to shorten individuals’ diagnostic journey and the time till they access treatment which might improve their quality of life or even prevent disease progression – through these brief courses that are certified for CME credit.

Rare Disease Clinical Trials CME Program

Learn about clinical trials and rare diseases through these brief courses that are certified for CME and CNE credit.
  • Heather Lau, MD, MS, NYU School of Medicine, New York, NY
  • Morie A Gertz, MD, Mayo Clinic, Rochester, MN
  • Timothy Craig, DO, Penn State University, Hershey, PA
  • Eric T. Wong, MD, Harvard Medical School, Boston, MA

Hematologic Disorders

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