National Organization for Rare Disorders (NORD®)

For more than 30 years, NORD® has been providing services for patients and their families, rare disease patient organizations, medical professionals, and those seeking to develop new diagnostics and treatments.

Rare Disease Researchers in Focus

Rare Disease Centers of Excellence in Focus

NORD® News and Highlights

Centers of Excellence

Resources for Physicians

Rare Disease Database

Resources for Families and Patients

Patient Assistant Programs

Rare Disease Day®

The National Organization for Rare Disorders (NORD®), an independent nonprofit, is leading the fight to improve the lives of rare disease patients and families. We do this by supporting the rare community – its people and organizations. We work together to accelerate research, raise awareness, provide valuable resources and drive public policy that benefits the estimated 25-30 million Americans impacted by rare diseases.

“NORD, the NORD logo and tagline are registered trademarks of the National Organization for Rare Disorders. NORD is a registered 501(c)(3) charity organization.”

“Rare Disease Day is a registered trademark of EURORDIS.”