by Cody Flett | Jun 1, 2024
The Rare Disease Clinical Research Network (RDCRN) is an initiative of the office of Rare Diseases Research that is designed to assist medical research involving rare diseases, including specific rare diseases that are overlooked by drug developers. The RDCRN also...
by Cody Flett | Feb 14, 2024
This February 28th is Rare Disease Day 2023 and the National Institutes of Health (NIH) will once again be holding its annual Rare Disease Day Event. This day, and event, brings awareness to various rare diseases, how they affect patients, and addresses scientific...
by Cody Flett | Mar 4, 2023
Peter Saltonstall, President and Chief Executive Officer of the National Organization for Rare Disorders (NORD), discusses the organization’s new centers of excellence (COEs) and why now was the best time to start this initiative. As stated by Saltonstall, NORD (and...
by Cody Flett | Feb 22, 2023
Peter Saltonstall, President and Chief Executive Officer of the National Organization for Rare Disorders (NORD), discusses NORD’s approach and involvement with Rare Disease Day. The concept of Rare Disease Day – the last month of February – is the brainchild of Yann...
