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European Initiative Targets Diagnosis, Treatment of Rare Diseases - Epidermolysis Bullosa News July 18, 2019
My toothache became an infection that nearly killed me - New York Post July 18, 2019
LifeMax Receives Rare Pediatric Disease Designation for LM-030 for the Treatment of Netherton Syndrome - Yahoo Finance July 18, 2019
The fight for equal access to rare disease treatment - Raconteur July 18, 2019
'This is why we can't stop:' Family of girl with rare blood disease driving bone marrow registry - Ottawa Citizen July 18, 2019