CheckRare has created this privacy statement to demonstrate our commitment to our users’ privacy. The following discloses our information gathering and dissemination practices for CheckRare.


Privacy Statement

We are committed to protecting your privacy. Authorized persons on a need to know basis only use any information collected from individual people. We constantly review our systems and data to ensure the best privacy.




Your Internet browser has a feature called “cookies” which store small amounts of data on your computer about your visit to CheckRare. Our site uses cookies to keep track of your shopping cart and to save your password so you don’t have to re-enter it each time you are required to log in. In the future, cookies may be used to deliver content specific to your interest.


Traffic Data

Each time a visitor comes to CheckRare, we collect some basic technical information. We use software to keep track of traffic to our site and acquire such information as the location from which the traffic originates and which particular pages within CheckRare are being viewed and for how long. We may know for instance, how many page views and individual visitors to our Web site on any given day, but we do not know their names, addresses, or other personal information unless those users come to our site from our e-mail updates.


 Third Parties

Your name or other information will not be shared with third parties unless you have requested us to do so, such as when you choose to receive information and/or e-mail communications.



CheckRare’s web site contains links to other Web sites, and we are not responsible for the privacy practices or the content of such Web sites.



This site has security measures in place to protect the loss, misuse and alteration of the information under our control. Our computer networks and those of our hosting company are protected by passwords, firewalls, and other security.


E-mail Updates

CheckRare offers weekly and periodic e-mails to our users who are interested in learning about a specific disease, clinical trial, or rare disease topic. These e-mails are opt-in. If you wish to modify your address or unsubscribe, please send an e-mail to


Contacting CheckRare

If you have any questions about this privacy statement, the practices of this site, or your dealings with this Web site, you may contact us here.