Rare Diseases Clinical Research Network (RDCRN)
The Rare Diseases Clinical Research Network (RDCRN) is an NIH-funded research network of 20 active consortia or research groups. CheckRare is proud to be collaborating with the RDCRN to raise awareness of their programs.
Researchers in Focus
RDCRN News and Highlights
Webinars / Panel Discussions
Rare Diseases Being Investigated
RDCRN Research Groups and Studies
Tools for Researchers
Tools for Patients & Patient Groups
RDCRN Contact Registry
Latest News
RDCRN’s Goal
Rare diseases come with many challenges. Some diseases are not well characterized or defined, recruitment for trials can be difficult, evidence to guide treatments is scarce and very few expert centers are available for diagnosis, management and research. Our goal is to facilitate clinical research by creating rare diseases research groups to focus on related diseases, sharing the costs of our research infrastructures across the network, establish uniform studies for data collection, and make meaningful large-scale studies possible. We also directly engage with patients and their advocates, and train new investigators in rare disease research.