The Rare Disease Clinical Research Network (RDCRN) is an initiative of the office of Rare Diseases Research that is designed to assist medical research involving rare diseases, including specific rare diseases that are overlooked by drug developers. The RDCRN also assists in the recruitment and development of young investigators interested in pursuing a career in rare disease research. Below are current funding opportunities from RDCRN consortia.
The Brain Vascular Malformation Consortium (BVMC) is looking for applications to support clinical/translational investigators who are interested and qualified to focus on the study of rare neurovascular diseases. These rare diseases can include cerebral cavernous malformation (CCM), Sturge Weber syndrome (SWS), or hereditary hemorrhagic telangiectasia (HHT). The total budget for this research will be up to $55,000 per year and selected scholars will be expected to design and implement a clinical research project, perform the data analysis for the project, submit a manuscript for publication describing the results of the research, and draft a five-page proposal for future grant funding.
Deadline: February 13th, 2023.
To learn more, click here.
Developmental Synaptopathies Consortium (DSC) is actively pursuing applications for a pilot project to research DSC further. The investigators chosen will be required to focus their research on Tuberous Sclerosis Complex (TSC), PTEN Hamartoma Syndrome (PHTS) or Phelan-McDermid Syndrome (PMS). The total budget for this project will be $40,000. Those applying for a position within this pilot project must create a research proposal relating to DSC and what they would want to focus on as a priority if chosen to be an official investigator.
Deadline: February 15th, 2023.
To learn more, click here.
The Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN) is seeking applicants for their career development award. This is a mentored award that is able to provide “protected time” to clinically trained individuals to receive monitored training in research related to Leukodystrophy. The award supports supervised research, career development opportunities and support while developing a research project. The award will provide up to $85,000 for research and salary of the selected applicant. Applications are only accepted from those that create a research proposal and focus only on the disease Leukodystrophy and already have experience with it.
Deadline: February 20th, 2023.
To learn more, click here.
Congenital and Perinatal Infections Consortium (CPIC) is eager to get people into their Scholar Program. The program deals with perinatal and infectious diseases such as congenital cytomegalovirus (CMV) disease, neonatal herpes simplex virus (HSV) infection, neonatal enterovirus (EV) and parechovirus (HPeV) sepsis. Each scholar will be accompanied by a mentor while participating in each project. These scholars will then attend meetings at the annual ID week and participate in semi-monthly 1-hour seminars. To be accepted into this program, you will need to create a cover page, a scholar NIH biosketch, mentor NIH biosketch and a mentor letter of commitment.
Deadline: Open.
To learn more, click here.
To stay up-to-date on the latest developments at the RDCRN, visit https://checkrare.com/rare-diseases-clinical-research-network/
