The United MSD Foundation

Sarah Cortell Vandersypen, Executive Director of the United MSD Foundation, discusses the organization’s work with multiple sulfatase deficiency.     The United MSD Foundation is an international patient advocacy group focused on providing support for...

MLD Current and Emerging Treatment Options

Dean Suhr, President and Co-Founder of MLD Foundation, discusses current and emerging treatment options in metachromatic leukodystrophy (MLD).     MLD is a genetic lysosomal disorder characterized by the toxic buildup of lipids and other storage materials...

What is Sturge-Weber Syndrome?

Karen Ball, founder of the Surge-Weber Foundation discusses Sturge-Weber Syndrome, a rare neurovascular disease.     Sturge-Weber syndrome is a rare neurocutaneous disorder that primarily affects the skin and the central nervous system. It is characterized...