by CheckRare Staff | Dec 15, 2023
Robert J. Pignolo, MD, Professor at Mayo Clinic, Rochester, MN, discusses fibrodysplasia ossificans progressiva (FOP), a rare genetic disorder characterized by the organization of heterotopic hard tissues within the soft tissues, such as ligaments, tendons, and...
by CheckRare Staff | Dec 14, 2023
Gordon Smith, MD, Professor and Chair of Neurology, Virginia Commonwealth University, gives advice on raising awareness and diagnosing myasthenia gravis. Transcription: It’s challenging to provide education for primary care around diseases...
by CheckRare Staff | Dec 12, 2023
Andrew Bomback, MD, Columbia University Medical Center, discusses the Phase 2 NOBLE study, testing pegcetacoplan in patients with immune-complex MPGN or C3 glomerulopathy. Transcription: The NOBLE study is a really interesting study because what...
by CheckRare Staff | Dec 7, 2023
Richard Lewis, MD, Department of Neurology, Cedars-Sinai Medical Center, explains CIDP and efgartigimod, a new treatment that targets FcRn. Transcription: My name is Richard Lewis. I’m a Professor of Neurology at Cedar-Sinai Medical Center...
by CheckRare Staff | Dec 5, 2023
Gordon Smith, MD, Professor and Chair of Neurology, Virginia Commonwealth University, explains how the current healthcare system leads to inequalities in diagnosis and treatment of myasthenia gravis. Transcription: I’m Gordon Smith. I’m a...
