by CheckRare Staff | Apr 25, 2025
Greg Yanik, MD, Clinical Professor at University of Michigan’s C.S. Mott Children’s Hospital, provides an overview of this rare childhood cancer, goals of therapy, using the Curie score, and immunotherapy treatments. « Prev1 / 1Next...
by CheckRare Staff | Apr 23, 2025
Gavin Lindberg details his family’s experience with neuroblastoma, provides advice to families, and discusses the EVAN Foundation. « Prev1 / 1Next »Gavin Lindberg The EVAN FoundationGavin Lindberg AdviceGavin Lindberg Evan's StoryNeuroblastoma:...
by CheckRare Staff | Mar 2, 2025
Neuroblastoma is a rare childhood cancer, but it is the most common extracranial solid tumor in children. It is a neuroendocrine tumor that originates in neuroblasts or neural crest progenitor cells. It often appears initially in the adrenal glands, but tumors can be...
by CheckRare Staff | Feb 1, 2025
Watch the DAYBUE® (trofinetide) in Practice Video Series to Hear Expert Insights on the First Treatment for This Rare Disease By: CheckRare Staff | Updated on: Jan 28, 2025 Rett syndrome thought leaders discuss how DAYBUE® (trofinetide), the first and only...
by CheckRare Staff | Jan 29, 2025
Jean Donadieu, MD, Service d’Hémato-Oncologie Pédiatrique, Hopital, Paris, provides an overview of WHIM syndrome. « Prev1 / 1Next »WHIM Syndrome: Overview, Diagnosis, and MagementWHIM Syndrome: Overview and Importance of Early Diagnosis...
