by CheckRare Staff | Jul 17, 2025
Researchers from Berlin, Germany and Beirut, Lebanon have confirmed in a prospective, observational study that patients with uncontrolled symptoms of indolent systemic mastocytosis (ISM) can improve disease control and their quality of life with the use of...
by CheckRare Staff | Jul 10, 2025
Adeline Vanderver, MD, Program Director of the Leukodystrophy Center in the Division of Neurology at Children’s Hospital of Philadelphia (CHOP), and Co-Principal Investigator of the Global Leukodystrophy Initiative Clinical Trials Network (GLIA-CTN), provides some...
by CheckRare Staff | Jun 26, 2025
Neha Mehta-Shah, MD, Medical Oncologist at Washington University St. Louis, provides an overview of cutaneous T-cell lymphoma (CTCL), discusses management options, and addresses quality-of-life concerns. « Prev1 / 1Next »Cutaneous T-Cell Lymphoma:...
by CheckRare Staff | Jun 23, 2025
Jorge Cortes, MD, Director of the Georgia Cancer Center, provides an overview of chronic myeloid leukemia (CML), discusses treatment options, and offers advice to newly diagnosed patients. « Prev1 / 1Next »Chronic Myeloid Leukemia: Overview,...
by CheckRare Staff | Jun 9, 2025
Laura Mamounas, PhD, Program Director at the National Institute of Neurological Disorder and Stroke (NINDS) at the NIH in Bethesda, discusses the challenges of diagnosing Rett syndrome. At the time of diagnosis, the average age of patients with typical...
