by James Radke | Jun 9, 2021
Dylan Simon, Newborn Screening and Diagnostics Policy Manager at Everylife Foundation, discusses the organization’s event, Newborn Screening Bootcamp. The Newborn Screening Bootcamp is an annual event geared towards bringing all parties involved in newborn...
by James Radke | Jun 4, 2021
Marla Munro, PhD student in Counseling Psychology at the University of Houston, discusses the results of a recent study looking at how stigma is uniquely experienced by people with rare diseases. As Ms. Munro explains, the study used a qualitative approach to...
by James Radke | May 14, 2021
Spero R. Cataland, MD, Oncologist and Hematology Specialist at Ohio State University Wexner Medical Center and the James Cancer Hospital, describes what physicians ought to know about thrombotic thrombocytopenic purpura (TTP). TTP is a rare hematologic...
by James Radke | Apr 28, 2021
Shruti Chaturvedi, MBBS, MS, Assistant Professor of Medicine at Johns Hopkins explains the challenge of treating Jehovah’s Witnesses who have thrombotic thrombocytopenic purpura (TTP). TTP is an ultra-rare hematologic condition due to reduced ADAMTS13 enzyme...
by James Radke | Apr 26, 2021
X. Long Zheng, MD, PhD, Chair and Service Chief, Department of Pathology and Laboratory Medicine, at the University of Kansas Medical Center, talks about the need for more education and awareness about thrombotic thrombocytopenic purpura (TTP). TTP is an...
