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Symptom Burden of Primary Biliary Cholangitis
Carol Roberts, President, The PBCers Organization, discusses the symptom burden of primary biliary cholangitis (PBC). PBC is a chronic, progressive, autoimmune, liver disease in which the bile ducts become inflamed and damaged. This leads to the buildup...African American with Huntington’s Disease Explains Her Diagnostic Journey
Tanita Allen, a patient advocate with Huntington disease, discusses her diagnostic journey and advocacy work. Huntington’s disease is an inherited condition that causes progressive degeneration of central neurons. It is caused by changes in the HTT gene...Hereditary Angioedema Patient’s Preferences in Treatment
Courtney Olson, MD, Beth Israel Deaconess Medical Center, discusses results of a survey of patients with hereditary angioedema (HAE) and their preferences for an oral long-term prophylactic (LTP) treatment. HAE is a rare disease characterized by...