by Madaline Spencer | Jul 16, 2025
Erin Dunbar, MD, founding physician of the Brain Tumor Center and Director of Neuro-Oncology at Piedmont Atlanta Hospital, discusses the current landscape of glioblastoma. Glioblastoma is a malignant brain tumor that develops from an astrocyte brain...
by CheckRare Staff | Jun 23, 2025
Jorge Cortes, MD, Director of the Georgia Cancer Center, provides an overview of chronic myeloid leukemia (CML), discusses treatment options, and offers advice to newly diagnosed patients. « Prev1 / 1Next »Chronic Myeloid Leukemia: Overview,...
by Madaline Spencer | Jun 17, 2025
Deb Jennings, Head of North America Patient Services Operations at Kyowa Kirin, discusses evolving policy landscapes for rare disease access. In a panel discussion at the 2025 World Orphan Drug Congress, Ms. Jennings explained the volatility of the...
by Madaline Spencer | Jun 16, 2025
Katie Niemeyer, patient advocate, discusses her experience with Stevens-Johnson syndrome/toxic epidermal necrolysis (SJS/TEN). SJS/TEN is a very severe reaction that causes skin tissue to die and detach. SJS and TEN previously were thought to be separate...
by Madaline Spencer | Jun 12, 2025
Sumira Riaz, PhD, Health Psychologist & Patient Engagement Consultant at Unboxed Psychology, discusses the role of mental health in rare disease patient outcomes. Unboxed Psychology is an organization focused on improving the mental health and...
