Marsha Lanes, MS, CGC, of the National Organization for Rare Disorders (NORD), talks about the history of NORD and its current role in helping to raise awareness, educate, and provide support for the 25-30 million Americans with a rare disease.
NORD is a non-profit patient advocacy organization focused on helping those with rare diseases. It started out as an ad hoc coalition of advocates to support the Orphan Drug Act of 1983. Today, NORD is a leading voice in the rare disease community with over 300 patient organization members and thousands of volunteers throughout the country.
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