Samantha Masterson, CEO and President of Myasthenia Gravis Foundation of America (MGFA), gives advice to newly diagnosed myasthenia gravis patients.
Myasthenia gravis is a chronic autoimmune neuromuscular disease characterized by weakness of the skeletal muscles. Common symptoms include weakness of the muscles that control the eyes, eyelids, facial expressions, chewing, talking, and swallowing. The condition results from a defect in the transmission of nerve impulses to muscles, which is due to the presence of antibodies against acetylcholine receptors (or other endplate receptors).
Ms. Masterson advises newly diagnosed myasthenia gravis patients and their caregivers to be their own best advocate. This includes constantly educating oneself, finding a good support network, and standing up for oneself.
To learn more about myasthenia gravis, visit our Myasthenia Gravis Learning Center here.