by Jake Ciszewski | Jun 6, 2025
Rare disease awareness days serve an important purpose of informing the public, creating community, and raising money to support funding towards new research and treatments. Below is a calander containing rare disease awareness days and months as well as more...
by Jake Ciszewski | Jan 1, 2025
by Jake Ciszewski | Jan 1, 2025
by Jake Ciszewski | Jan 17, 2024
Cynthia Qi, Health Economics Outcomes Researcher at Argenx discusses her poster presentation focused on generalized myasthenia gravis. Transcription: The poster I have is about the real-world outcomes of myasthenia gravis patients receiving...
by Jake Ciszewski | Jan 16, 2024
Christine Eng, Chief Medical Officer at Baylor Genetics, discusses the information her company presented at various conferences. Transcription: We are presenting at these three conferences. NORD is really a unique conference because it brings together...