Rare Disease Recognition and Awareness Days

Rare disease awareness days serve an important purpose of informing the public, creating community, and raising money to support funding towards new research and treatments. Below is a calander containing rare disease awareness days and months as well as more...

Generalized Myasthenia Gravis

  Cynthia Qi, Health Economics Outcomes Researcher at Argenx discusses her poster presentation focused on generalized myasthenia gravis.     Transcription: The poster I have is about the real-world outcomes of myasthenia gravis patients receiving...

Baylor Genetics Data at NORD, NSGC, and ASHG

Christine Eng, Chief Medical Officer at Baylor Genetics, discusses the information her company presented at various conferences.     Transcription: We are presenting at these three conferences. NORD is really a unique conference because it brings together...