by Peter Ciszewski | Aug 12, 2019
Daniel DeFabio discusses the Rare Disease Film Festival, a relatively new event showcasing films from around the world which address the challenges of life with a rare disease. The first event was held in Oct of 2017 in Boston, MA. Daniel states that the Film...
by Peter Ciszewski | Aug 9, 2019
At the American Academy of Neurology (ANN) Annual Meeting recently held in Philadelphia PA, we talked with Hideki Garren, MD, PhD, Global Head of Multiple Sclerosis and Neuroimmunology at Genentech about neuromyelitis optica spectrum disease (NMOSD), a rare...
by Peter Ciszewski | Aug 8, 2019
At the American Academy of Neurology (ANN) Annual Meeting, we talked with Philip Fortier, executive director of Defeat MSA USA, Defeat MSA Canada, and the MSA Awareness Shoe. Multiple System Atrophy (MSA) is a rare, neurodegenerative disorder that...
by Peter Ciszewski | Aug 7, 2019
Scott Schobel, MD, MSc is the clinical science leader for Roche’s Huntington Disease Program. In this video, he provides an overview of the disease including research being conducted at Roche. Dr. Schobel said, “Huntington’s disease is a relentless...
by Peter Ciszewski | Aug 6, 2019
Shani Weber, Patient and Community Advisor for the Ehlers Danlos Society recently talked to us about the role this international organization plays in educating people, including those in the medical community about Ehlers-Danlos syndrome (EDS). EDSs are...
