Susan Thornton, CEO of Cutaneous Lymphoma Foundation, gives an overview of the foundation.
Cutaneous lymphoma is a rare subtype of non-Hodgkin lymphoma that primarily affects the skin. Cutaneous lymphoma can originate in B-cells (i.e., cutaneous B-cell lymphoma); however, cutaneous T-cell lymphoma (CTCL) is more common. There are many forms of CTCL but mycosis fungoides and Sézary syndrome are the most common and most severe.
As Ms. Thornton explains, the Cutaneous Lymphoma Foundation was started on the principle that connecting patients with each other was particularly important for rare disease communities. The organization has been around for over 20 years and still focuses on patient education and connection. They aim to connect patients with other patients, research opportunities, clinical trial data, and more.
To learn more about cutaneous lymphoma and other rare cancers, visit checkrare.com/diseases/cancers/.