Louie Lee, PhD, Neurological Physiotherapist at University College London, discusses clinicians’ perspectives on implementing self-management support programs for people with neuromuscular disorders.
Implementing self-management support programs may be impeded by the lack of clinical studies showing how to implement these programs into routine practice. Therefore, the aims of this study included exploring the demand for Neuromuscular (NM) Bridges (a self-management support program), as well as its acceptability, practicability, and appropriateness. Additionally, the implementation process was examined, including barriers and facilitators.
The NM Bridges program focuses on supporting patients through building their confidence and knowledge in managing their conditions. It also works with clinicians to focus on aspects that are most important to the patients, leading to more efficient work.
As Dr. Lee explains, for complex interventions, such as the NM Bridges program, it is important to look at the relationship between clinician and patient and how a patients’ support network is incorporated into clinician consultation. However, these are not easily measurable.
Six clinicians were trained in the NM Bridges intervention and delivered it as routine care to patients. The study revealed that strong clinician engagement, adaptability to patient needs, collaborative learning environments, and supportive leadership were facilitators to implementation of the NM Bridges program. Additionally, challenges included role identity conflicts, selective patient inclusion, questions of long-term sustainability, and variable interdisciplinary adoption.
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To learn more about rare neuromuscular disorders, visit https://checkrare.com/diseases/musculoskeletal-diseases/
