Tracy Dixon-Salazar, PhD, Executive Director of the Lennox-Gastaut Syndrome (LGS) Foundation, gives an overview of the disease and what the foundation is doing to help this patient community.

As Dr. Dixon-Salazar explains, LGS is a rare neurological condition that usually begins in childhood. It is characterized by multiple types of seizures and intellectual disability. LGS patients often have multiple seizures per day; sometimes hundreds of times that are treatment-resistant. The condition is not congenital. It can be caused by brain malformations, perinatal asphyxia, severe head injury, central nervous system infection, and inherited degenerative or metabolic conditions. In about one-third of cases, no cause can be determined.

Dr. Dixon-Salazar notes that the LGS Foundation is primarily focused on providing patient and family support, which is especially important in LGS as it takes a huge emotional toll on the family. 

To learn more about LGS and other rare neurological disorders, visit checkrare.com/diseases/neurology-nervous-system-diseases/