Rare Disease Centers of Excellence in Focus

The National Organization for Rare Disorders (NORD^®), an independent nonprofit, is leading the fight to improve the lives of rare disease patients and families. We do this by supporting the rare community – its people and organizations. We work together to accelerate research, raise awareness, provide valuable resources and drive public policy that benefits the estimated 25-30 million Americans impacted by rare diseases.

NORD, the NORD logo and tagline are registered trademarks of the National Organization for Rare Disorders. NORD is a registered 501(c)(3) charity organization.”