The History of Sarcoma Treatment Development

  Roman Grosiberg, MD, Medical Oncologist and Director of the Sarcoma Program at Rutgers Cancer Institute of New Jersey/RWJBarnabas Health, discusses how the drug development process for sarcomas has shifted in the last 60 years. Sarcomas are rare cancers that...

What is Sly Syndrome

  Deborah Marsden, MD, Global Medical Expert, Medical Affairs, Ultragenyx, gives an overview of mucopolysaccharidosis type VII (MPS VII).  MPS VII is a rare progressive metabolic condition that affects most tissues and organs. The disease is also known as Sly...

Talking to Parents About Newborn Screening

  Dawn Laney, MS, CGC, CCRC, Genetic Counselor and Director of Emory Genetic Clinical Trials Center, discusses the importance of knowing how to talk to parents about a newborn screening result. As Ms. Laney notes, when providing results of a newborn screening...

Overview of Cutaneous Lymphoma

  Susan Thornton, CEO of Cutaneous Lymphoma Foundation, gives an overview of cutaneous lymphoma and its subtypes. Cutaneous lymphoma is a rare subtype of non-Hodgkin lymphoma that primarily affects the skin. Cutaneous lymphoma can originate in B-cells (i.e.,...