Louise Vetter, President and CEO of the Huntington’s Disease Society of America, explains how all healthcare professionals, not just those specializing in Huntington disease, can help people with this rare condition.
Huntington disease is an inherited, neurodegenerative disorder that usually begins to be symptomatic starting at around 40 years of age. Persons with Huntington disease suffer from a progressive movement disorder, cognitive decline, psychiatric disturbances, and behavioral symptoms. All symptoms progress which eventually leads to immobility, dementia, and premature death. .
Ms. Vetter argues that most physicians who are not specialized in Huntington disease are unaware how much they may be able to help a patient with the disease. Part of this is due to a lack of experience with Huntington disease patients and/or education about the disorder. Ms. Vetter advises health care providers to reach out to Huntington disease specialists in order to better understand the ways they can help patients manage early symptoms, maintain quality of life, and maximize the resources available to them.
To learn more about Huntington disease and other rare neurological disorders, visit checkrare.com/diseases/neurology