Kyle Bryant is a rare disease advocate and the founder/director of rideATAXIA for the Friedreich’s Ataxia Research Alliance (FARA). Kyle and his team produce family friendly bike rides across the country to empower those with Friedreich’s Ataxia and raise funds for research.

In this video, Kyle discusses his journey as someone living with Friedreich’s Ataxia and his responsibility to the rare disease community. Kyle was diagnosed with Friedreich’s Ataxia at the age of 17 and has recently written a book “Shifting Into High Gear.” You can learn more about Kyle and his book at http://kyleabryant.com.