Marsha Lanes, MS, CGC, of the National Organization of Rare Disorders (NORD), talks about the many activities the organization has planned for Rare Disease Day – February 28th.
As Ms. Lanes explains, numerous events are planned, including social media engagement with Show Your Stripes, community awareness programs like Light Up For Rare, local and state campaigns, and TV programs such as a Behind the Mystery special scheduled for February 24th.
For the medical and research community, Ms. Lanes noted the National Institutes of Health (NIH) will host an event on March 1st to raise awareness of current trends in rare disease research.
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