Happy Huntington Disease Awareness Month! 

Initiated by the Huntington Society of Canada, Huntington Disease Awareness Month has since become a global movement. Organizations such as the Huntington Disease Society of America and the European Huntington Association have joined in through campaigns like #LetsTalkAboutHD, which encourages families to share their experiences with Huntington disease on social media.

 

 

Huntington disease is a debilitating, inherited, neurodegenerative disorder. If a parent has Huntington, each of their children has a 50% chance of developing it as well.  Despite this, there is no approved treatment for the disease itself and, sadly, just a few weeks ago, two of the leading clinical trials involving possible treatments for Huntington disease were terminated. 

Fortunately, Prilenia Therapeutics’ PROOF-HD trial is still underway. The first U.S. subjects were enrolled in October 2020 and enrollment is predicted to end in November 2021. The purpose of the study is to test the safety and efficacy of pridopidine in patients with early stage Huntington disease. For more information, click here

 

 

To learn even more about Huntington disease and other rare neurological disorders, visit checkrare.com/diseases/neurology