by CheckRare Staff | Jul 19, 2023
Richard Lafayette, MD, FACP, Director of the Stanford Glomerular Disease Center, and Rheumatologist at Stanford Health Care, describes the latest clinical trial assessing Nefecon (budesonide delayed-release capsules) for immunoglobulin A (IgA) nephropathy treatment....
by CheckRare Staff | Jul 17, 2023
Frank Rivera, a sarcoidosis patient, discusses his diagnostic journey, including a lung cancer misdiagnosis. Mr. Rivera is a member of Stronger that Sarcoidosis and Sarcoidosis of Long Island, two patient advocacy groups focused on raising awareness and research...
by CheckRare Staff | Jul 14, 2023
Tracy Dixon-Salazar, PhD, Executive Director of the Lennox-Gastaut Syndrome (LGS) Foundation, provides an overview of the disease, the disorder’s unique resistance to treatment, and what the foundation is doing to help this patient community. What Is...
by CheckRare Staff | Jul 13, 2023
Thomas Hutson, DO, PharmD, FACP, Director of the Urologic Oncology Program at Baylor University Medical Center and the Sarah Cannon Research Institute at Texas Oncology I The US Oncology Network discusses the recent advances made in kidney cancer treatment. This...
by CheckRare Staff | Jul 6, 2023
Jill Kiernan explains Tatton Brown Rahman Syndrome (TBRS). Jill is the executive director of the TBRS Community, a patient advocacy group committed to bringing together families, clinicians, and researchers interested in this rare disease. TBRS is a rare...
