by CheckRare Staff | Jan 26, 2023
Diana Castro, MD, founder of the Neurology Rare Disease Center in Dallas, Texas discusses newborn screening for spinal muscular atrophy (SMA) in the United States. SMA is a genetic disease that affects motor neurons in the spinal cord and control of muscle...
by CheckRare Staff | Jan 24, 2023
« Prev1 / 1Next »Thyroid Eye Disease: Overview, Diagnosis, and Current and Emerging Treatment OptionsLong-Term Data Testing Treatment in Patients With Thyroid Eye DiseaseEducation Campaign for Thyroid Eye DiseaseTrends and Social Determinants of...
by CheckRare Staff | Jan 23, 2023
Adeline Vanderver, MD, Program Director of the Leukodystrophy Center in the Division of Neurology at Children’s Hospital of Philadelphia (CHOP), provides an overview of the different types of clinical trials that are underway to treat individuals with...
by CheckRare Staff | Jan 19, 2023
Alok Tayi, PhD, Founder and CEO of Vibe Bio, gives an overview of his company, its mission and objectives, and how it plans to advance the development of rare disease therapies. As Dr. Tayi explains, he founded Vibe Bio after his daughter was hospitalized at...
by CheckRare Staff | Jan 18, 2023
Donald Zoz, MD, Director and Senior Clinical Program Leader for Pulmonary Fibrosis at Boehringer Ingelheim provides an overview of idiopathic pulmonary fibrosis (IPF) and how to diagnose this rare condition. IPF is a chronic, progressive, fibrosing lung disease...