by Madaline Spencer | Sep 22, 2025
Michele Rayes, Associate Director of the HypoPARAthyroidism Association and patient, discusses the diagnosis and management of hypoparathyroidism. Hypoparathyroidism is a rare endocrine disorder in which the parathyroid glands do not produce enough parathyroid...
by Madaline Spencer | Sep 19, 2025
Sharon Halperin, Research Director for Lipodystrophy United and patient, discusses her diagnostic journey with lipodystrophy. Lipodystrophies are rare metabolic disorders characterized by the loss of adipose tissue. This leads to complications such as...
by Madaline Spencer | Sep 18, 2025
Patty Keating, Executive Director of the HypoPARAthyroidism Association and patient, discusses the daily symptom burden of hypoparathyroidism. Hypoparathyroidism is a rare endocrine disorder in which the parathyroid glands do not produce sufficient parathyroid...
by Madaline Spencer | Sep 17, 2025
Vivian Lin, MD, Executive Medical Director of Medical Affairs at Neurocrine, discusses the CAHtalyst clinical trials in adults with congenital adrenal hyperplasia (CAH). CAH refers to a group of genetic conditions that affect the adrenal gland production...
by Madaline Spencer | Sep 16, 2025
Alessandro Albuquerque, MD, PhD, Chief Medical Officer of Recordati Rare Diseases North America, discusses unmet needs of patients with Cushing’s syndrome. Cushing’s syndrome is a rare endocrine disorder caused by prolonged exposure of the...