Ryan Colburn, a man with late-onset Pompe disease talks about his personal perspective on the risk involved in managing his condition, job, and personal life during the pandemic.

Pompe disease is a rare lysosomal disorder that can lead to a plethora of neuromuscular problems due to the accumulation of glycogen in lysosomes. 

This presentation was part of the live GRIDS 2020-Virtual Summit held July 1, 2020 and is now available exclusively on CheckRare.

To receive CME credit, go to checkrare.com/learning/p-grids2020-module4-lysosomal-disease-management-and-covid-19/ 

 

 

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