by Madaline Spencer | Oct 28, 2024
Linda Lowes, PhD, Nationwide Children’s Hospital, Columbus, Ohio, discusses results from a study focusing on gross motor delay in boys with Duchenne muscular dystrophy (DMD). DMD affects the muscles, leading to muscle wasting that gets worse over time....
by Madaline Spencer | Oct 25, 2024
Cathy Turner, Project Manager for DMD Care UK at the John Walton Muscular Dystrophy Research Center at Newcastle University, discusses the TREAT-NMD Advisory Committee for Therapeutics (TACT). TACT was established in 2009 with the goal of providing...
by Madaline Spencer | Oct 24, 2024
Charlotte Handberg, PhD, Senior Researcher at the National Rehabilitation Center for Neuromuscular Diseases in Denmark, and Associate Professor at Aarhus University, discusses results from a survey of parents’ hopes, worries, and needs for their children with spinal...
by Madaline Spencer | Oct 23, 2024
Thomas Crawford, MD, Pediatric Neurologist at Johns Hopkins, discusses the results from the DEVOTE study using a higher dose of nusinersen to treat patients with spinal muscular atrophy (SMA). SMA is a group of genetic neuromuscular disorders that affect the...
by Madaline Spencer | Oct 22, 2024
Emma Robinson, Neuromuscular Research Physiotherapist at the John Walton Muscular Dystrophy Research Center at Newcastle University, discusses how losing the ability to stand affects dysferlinopathy patients’ social participation. Dysferlin-related...
